Sunday 1 December 2019

Telling Tales about Dementia by Lucy Whitman and Joanna Trollope

Telling Tales About Dementia: Experiences of CaringTelling Tales About Dementia: Experiences of Caring by Lucy Whitman
My rating: 4 of 5 stars

Time taken to read - 2 days as able

Pages - 222

Publisher - Jessica Kingsley Publishers

Source - bought

Blurb from Goodreads

How does it feel when someone you love develops dementia? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need?

In Telling Tales About Dementia, thirty carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: 'I still find it hard to believe that Alzheimer's has happened to us,' writes one contributor, 'as if we were sent the wrong script.' The stories told here vividly reflect the tragedy of dementia, the gravity of loss, and instances of unsatisfactory diagnosis, treatment and care. But they contain hope and optimism too: clear indications that the quality of people's lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us.

This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including relatives of people with dementia, social workers, medical practitioners and care staff.

My Review

Dementia, Alzheimer's - these are words that everyone recognises. Be it from personal experience, through their work, campaigns on tv or even in books and movies now. We will all be touched by it in some form or another, this book gives a very raw and emotive look into the journey's of their own, their loved ones and how they coped and or what they experienced.

There are also, within some of the stories, the very stark reality of what these conditions do, how it progresses and how differently it affected their loved ones and their own lives. They mention Admiral nurses, an amazing and free resource for families who are supporting someone with Dementia. is the website and has a free telephone number 0800 888 6678.

The book looks at some of the horrific failings these people encountered, the heartbreaking journeys with their loved one(s) and how horrific this condition is, what it takes and how they managed to survive watching their loved ones disappear from them, piece by piece.

I would recommend everyone read this book, if it helps one person be a bit more understanding or gives an additional resource/lifeline for people to reach out to, it has done it's job. It also gives the reader insight into how we can help, be supportive or maybe even learn some coping techniques ourselves, 4/5 for me this time.

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